College of Education and Health Professions

Sickle Cell Project

Our purpose is to establish a follow-up component of Arkansas' sickle cell disease screening program, including community-based hemoglobinopathy counseling, education and support services.

Woman getting blood test for sickle cell Germaine and son at Sickle Cell display

Our Goals and Objectives:

The project goal is to improve the lives of children and families affect by sickle cell disorders through newborn screening follow-up and referrals, education, and family support.

The objectives are to improve the lives of children with sickle cell and their families by:

  • expanding the newborn screening follow-up to include education about sickle cell trait and hemoglobinopathy testing to 500 families of children born with sickle cell trait each year;
  • training 70 health care professionals each year;
  • providing sickle cell disease education to 500 persons annually; and
  • offering family support to 100 families annually

Downloads

Educational Links

For Information Contact: Ruby Brown brownrubyd@uams.edu


Staff

David Deere David Deere, M.S.W is the Director of Partners, for Inclusive Communities and the Principal Investigator for the project, Living Well with Sickle Cell. For the past thirteen years he has provided education about sickle cell disease and helped to organize support groups for persons with the illness statewide. He is currently serving as a vice-chair of the Arkansas Sickle Cell Task Force.

Ruby Brown Ruby Brown, B.A. is the Project Director for Living Well with Sickle Cell. For the past thirteen years she has provided education about sickle cell disease and helped to organize support groups for persons with the illness statewide. She is also the program director for Southeast Arkansas Parenting Program that provides support to new parents in Lincoln, Chicot and Desha counties by establishing small, long-term teams using a peer self-help approach to extend a hand to young parents through the stages of parenthood.

Partners for Inclusive Communities